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Cleveland ACT 2019

Saturday, May 4, 2019, 3:00 PM

Register for the only 2019 Alport Connect Together (ACT) Meeting! After you register, information regarding patient travel stipends will be sent to your email address. ACT Family Weekends are: SOCIAL, INFORMATIVE, BENEFICIAL, EMPOWERING, SUPPORTIVE, HOPEFUL! ACT weekends are an incredible opportunity to connect with Alport syndrome physicians, reserachers and other families regionally and from across the country. You'll leave feeling empowered with knowledge and supported by new friends in the extended Alport Community. There is separate programming for Adults and Teens/Young Adults. Both programs run simultaneously and are facilitated by medical professionals and trained patient mentors. Fun activities and childcare available for children ages 5-12. Please let us know if you plan to use the childcare services.  Whether you are newly diagnosed or a seasoned patient, there is a place and purpose for you at the ACT Family Weekend... NEW PROGRAM OPTIONS IN 2019 Based on patient feedback from past meetings, ASF is offering additional new topics and presentations. More program details coming soon.                   “Go. Just go. Do whatever you can to attend, and bring the whole family.                                                                      It was very helpful not only to my son, but also incredibly helpful for me                                                                       and my husband as parents, and my older son who does not have AS.                                                                         It helped him understand what his brother is going through, and how to                                                                       support him. It brought us closer as a family.”  Alport Patient Mother, ACT attendee Benefits of ACT Family Weekends: Meeting other families that relate to your experiences Understanding the latest research from leading experts Learning more about disease management, available resources, and how to self-advocate Socializing and building bonds with families you will reach to for support over time

Tickets: https://www.eventbrite.com/e/cleveland-act-2019-tickets-54607719158?aff=aff0eventful

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2049 E 100th Street
Cleveland, OH 44195

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